This week was the first Trustee Meeting in London of this year. We discussed our plans for 2011 and beyond. We like to remind you that in April LUPUS EUROPE will take part in the 8th European Lupus Meeting Porto 2011 and in May an information stand is planned at the EULAR Congress 2011 in London. To remind you of Rare Disease Day February 28th this brief NewsFlash is sent now. In March you receive another NewsFlash with more news about the different items.
We wish you pleasant reading. Trustees of LUPUS EUROPE
*** Rare Disease Day ***
Rare Disease Day is an annual awareness-raising event coordinated by EURORDIS at the international level and National Alliances of Patient Organisations at the National level.
Last year 46 countries joined in -- making it a truly international campaign.
This year’s focus is on RARE DISEASES & HEALTH INEQUALITIES.
The official website is www.rarediseaseday.org
If you are a patient or patient representative and are planning an awareness-raising event, please contact your National Alliance .
If you are not a patient rep you can also participate by becoming a Friend of Rare Disease Day. You only have to post the logo on your website and link your website to www.rarediseaseday.org.
The slogan of the campaign is « RARE BUT EQUAL ». We encourage you to use it, together with the logo, banner and poster, which are available in the ‘Downloads’ section of www.rarediseaseday.org
You can also:
Join Rare Disease Day Facebook Group or follow Rare Disease Day on Twitter
Questions? Suggestions? Drop an email at firstname.lastname@example.org
Get involved – this day is the Day to put rare diseases in the spotlight!
*** Patients’Rights Day April 18th ***
to be celebrated in Brussels on April 11th and 12th
Active Citizenship Network (ACN) together with a group of European citizens organisations in 2002 drafted the European Charter of Patients’Rights.
Please see www.activecitizenship.net/content/view/283/165/ for Patients’s Rights in your own language. Take a look at www.activecitizenship.net/content/view/331/179 for more information about the conference in Brussels.
On the 11-12th of April 2011 ACN organize the European Conference of the 5th European Patients’ Rights Day to bring together different stakeholders to discuss the real conditions of citizens in the health care services in Europe.
*** European patients’ Forum Annual Meeting in Brussels on April 12th and 13th ***
EPF is involved in the activities on Patients’ Rights Day. The Trustees are happy to announce that Katharine Wheeler, delegate of the Lupus Group Belgium (French) is willing to represent LUPUS EUROPE at the EPF Meeting.
26th February 2011
Secretary LUPUS EUROPE